Help shape the participant experience
People living with chronic illness and advocates can review the page, example record and proposed check-ins. Help us identify what is useful, confusing or burdensome before we build further.
Before choosing a course, you deserve a clear account of what it offers. During it, you deserve support in understanding what you are trying, how you are experiencing it and what to do with what you learn.
Our proposed Program Observatory would extend the audits into that experience. A portable record would connect the course’s teaching with your participation, symptoms, perceptions and changing choices.
The audits are available to explore. The Observatory is a proposal: this page does not enroll participants or collect health information.
Explore what it asks you to do and believe, its evidence and demands. Consider how it fits your goals, resources and preferences.
What am I being offered?
Connect the lessons you encounter with what you understand, actually try and notice in your symptoms, perceptions and daily life.
What is happening for me?
Return to your own record during the course. Identify questions and what you want to continue, adapt, discuss, pause or reconsider.
What do I want to do next?
Only if you choose to share: selected observations could contribute to research, improve the audits and inform better course design. We aim to make the support freely accessible, without requiring research participation.
The aim is to make your experience easier to understand while you are living it. Brief notes and periodic guided reflections would connect what you expected, tried and noticed, with room for your own words and corrections.
You would choose a manageable rhythm for reflection. The record should help you notice changes, prepare questions and review choices without requiring constant symptom checking.
This fictional example illustrates the proposed record. It is not a participant report, a course quotation or guidance to perform an exercise.
The record makes a useful distinction visible: attention and activity changed together. It does not establish what caused the later fatigue.
This follow-on to the audits needs patient input, research and development partners, and funding. Our next milestone is a participant-designed record, a working prototype and a plan for a small pilot.
People living with chronic illness and advocates can review the page, example record and proposed check-ins. Help us identify what is useful, confusing or burdensome before we build further.
Researchers, clinicians, designers and engineers can help connect audited teachings to participant records, develop accessible review tools and design the first evaluation. Start with a defined contribution that fits your expertise.
Help fund participant co-design and compensation, prototype development, and independent evaluation of usefulness and burden. The first deliverables would be a usable personal record, a pilot protocol and a plan for returning findings to the audits.
Each link opens an editable email to Wyatt to discuss a next step. You do not need to share a health history. These are design, collaboration and funding conversations; study enrollment is not open.